Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

4/14/03

Monday, April 14, 2003 9:19 PM CDT

 

Luke writing today. We had Nathan in to the clinic today. He was in for an exam and bloodwork to follow-up on his three days of treatments that ended Friday. He was also getting neupogen (sp?) which is a hormone to get his body producing white blood cells. His blood counts showed that he is already neutropenic (his immune system is shot from the chemotherapy). He got to this point faster than we expected, but that didn't seem to be a big concern to the doctors. It is likely that he hit this low point early because his marrow is so infiltrated by the cancer that there aren't as many good cells there to produce and maintain his blood counts. He is also anemic and his platelets are low. Tomorrow will be a transfusion of red blood cells and platelets.

 

His spirits were pretty good today. We still need to coax him to walk. There is still some fear, but we think he is still used to and liking being carried around. He smiled a lot and played some, so that was good.

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