Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Monday, July 14, 2003

Monday, July 14, 2003 1:11 PM CDT

Susan here...
Well - chemo is delayed again. This time because Nathan's broviak is pulling out and must be replaced. So he will have surgery tomorrow and start chemo on Wednesday. It has been very hot here and so it is hard to keep his dressing sticking to him. We hooked him up to fluids last night and so it got pulled during the night as he slept. We can't get the surgeon we prefer to do it (long story) so that is disappointing as well.
Nathan's platelets are just fine though - so we will start on Wednesday.
Thursday we will have a consult with two of the surgeons about his tumor resection. We will just go straight from chemo to do that.
Despite all the change in plans, Nathan is having a very good day and is just rolling with the punches. He knows his broviak needs to be replaced and he will not have chemo for a few more days and he is fine with that.
His surgery should be straightforward but it is always a little scary. Fortunately it will be at 8:30 am so we can get it over with.

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