Saturday, July 26, 2003 9:20 AM CDT
Susan here..
Sorry for the delay in updates. We have been getting almost no sleep but last night was much better and we are all feeling ok this morning.
We went in on Thursday for blood counts and Nathan's counts were all headed south - which is good. He was scheduled to go back in yesterday for a red blood transfusion and possible platelet transfusion. Around 8:45 yesterday morning his nose started to bleed and bled heavily for 3 hours. We called the clinic and they ordered him platelets and Luke rode in the back seat holding kleenexes to his nose all the way there. He finally go his platelets around noon. The clinic had run out of tubing to run blood products through and they had to run and get some. He got red blood cells as well and felt much better. He even napped there since they had to give him benedryl for his platelets and that made him sleepy.
His white blood cell counts are almost at zero. We are hoping they may start up again by Monday but we really have no idea.
His new broviak's stiches are irritated and possibly a little infected. This is very frustrating because the surgeons really want his to keep these stiches in but his doctors this they will have to come out - probably next week because they are so irritated. So we will see...
So this weekend he is very neutropenic and will be housebound for the most part. We may go for a little walk or hike.
Welcome to Nathan's Cancer Journey
This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.
Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.
I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.
Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.
I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.
Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.
I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.
Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.
I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.
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