Wednesday, July 9, 2003 4:15 PM CDT
Susan here..
I went yesterday and got the CD of all Nathan's test and so I glanced at his CT scan from Monday and I could tell it was smaller. The official report we got today has it down to 5 cm by 3 cm - this is down from about 8cm by 8 cm so that is good news. We are trying to figure out when it will be removed. Nathan's doctors seem less concerned about that than we are and so we are trying to get some different opinions (not formal second opinions or anything). We hope to get a surgeon to look at it very soon to give us an idea when it might be ready to be removed. Our doctors say it might not even be removed until after the stem cell transplant but Luke and I don't feel comfortable with that.
Nathan's platelets were still too low to start chemo (as we expected) His white blood cells are still low too and so he was given Neupogen to help bring them up. The doctor we talked to today thinks he will not be ready for chemo until Monday but we will be back in tomorrow to check his blood counts and will talk to Nathan's main doctor (who was out this morning) and see what he says.
So - it seems chemo will be delayed a week - which is somewhat disappointing because we really want to just keep the treatments going to get through all this.
Welcome to Nathan's Cancer Journey
This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.
Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.
I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.
Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.
I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.
Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.
I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.
Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.
I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.
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