Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Monday, July 28, 2003

Monday, July 28, 2003 8:27 PM CDT

Susan here...

Sunday was a pretty good day. Nathan was quite tired. We tried to go for a hike but he was too tired to walk. About 9:00 pm he woke up with a major nosebleed. After about an hour it stopped.

This morning we called the clinic to get him in early enough to check his platelets and they were back low again even though he was transfused on Friday. They gave him another transfusion this afternoon. He has to be premedicated with benedryl and that put him to sleep. When he woke up he was very cranky and out of control. I finally got him out of the clinic and we had to go to the surgeons office to have them look at his stiches on his catheter. The surgeons want them to stay in and his Oncologist wants them out because they are very irritated and causing him pain. The surgeon's nurse looked at it and called the surgeon and he said under no circumstance could he have them taken out and so we are to do daily bandage chages with neosporin to hopeful help the site. We'll see how it goes. Meanwhile it hurts him every time we change the bandage or accidentally push on the area so it won't be fun.

When we got home he went and played outside and was in a pretty good mood the rest of the evening - so that was nice. He is still very neutropenic so we are still stuck at home.

I find myself wishing I could write more you all of you but I am too tired to think very much right now. I'll have to have Luke write the next update so it is more interresting for you!

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