Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Thursday, July 31, 2003

Thursday, July 31, 2003 8:54 PM CDT

Susan here...

Nathan went to the clinic this morning. His white blood cell counts are still low (up to .2 from .1) a long way to go until he has some immunity but it should happen soon. He needs a red blood transfusion tomorrow and we'll see what his counts are then.

He'll be having an echocardiogram and EKG soon. They forgot to schedule it and he must have it before the next round of chemo. That is scheduled for next Wednesday but it doesn't seem like his counts will be high enough to start then.

He is on IV antibiotics now for his broviak insertion site. The stitches are still inflamed. At this point it is still unclear what they are going to do about it. I imagine he will go back and see the actual surgeon soon and they will figure something out.

He is also in extreme pain when he has a bowel movement. This happens every time his counts go down and he screams in pain. It is awful.

He is back taking baths again. He hadn't had one since diagnosis after he got his broviak and then he was afraid. We convinced him that it would help his bottom (which it does when his counts aren't low). Anyway we wrap him up in saran wrap and an ace bandage and don't fill the bath very much. He tells me that saran wrap is also used for food. It is so nice for everyone that he takes baths now because he always has fun and Julia is very happy to have him in with her again.

Right on schedule this time I have updated our family pictures. Follow the link below and click on July. It wasn't too hard because we weren't very good about taking very many this month.

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