Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Friday, January 23, 2004

Friday, January 23, 2004 6:42 PM CST

Last night was a bit rough as he woke up at 4:30 am and yelled "mom, it's morning!" I told him it wasn't and then he had a dirty diaper and then he went back asleep for a while and woke up again at 6:00 and told me it was morning. When he got up he wanted the rest of his McDonald's cheeseburger for breakfast so I gave it to him and turned on the TV for him and I went back to lie in bed for a few minutes.

Today was a good day. It was very cold this morning. We caught a taxi at least. He got started fairly early and he had much less pain today and got over it pretty quickly. As we went home he requested I go get him some things at the grocery store. He took his usual nap and then ate. After a while he wanted to go somewhere and so we walked to Best Buy and browsed around. I got him a Sponge Bob DVD.

He spent this evening watching the DVD and eating and then we had a bath together and squirted each other with bath toys.

Tomorrow we are going to my Uncle Ted and Aunt Carolyn's house for the afternoon. They are driving into the city to pick us up (they live in NJ just outside of the city).

On a sad note Luke told me that he awoke this morning to Julia saying "I want my Mommy back!" repeatedly in her crib. I think she is doing OK but just missing me. It will be good for her to be home with Luke all weekend. As the week progresses she has been more and more emotionally upset.

Luke sent me flowers and Nathan balloons today - which made us both very happy.

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