Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Tuesday, January 27, 2004

Tuesday, January 27, 2004 7:18 PM CST

Well - we have had two rough days...

Monday Nathan had trouble with his blood pressure. For a good while they couldn't read one at all but he was talking to us during it all. Mondays are so bad at the clinic - finger sticks, late starts, plus I didn't like the nurse we had. After we got home Nathan didn't want to nap but chilled out in front of the TV so I got a little break.

Today was even worse. He had to have a finger stick and they did that right before his pain came and then he got another dose of narcotics and immediately swelled up and started gasping for breath. They upped his oxygen and his levels were fine but he struggled to breath and I think it really hurt him. He kept saying he didn't want to breath because he couldn't during his pain. He started crying and didn't stop for an hour and a half. He finally stopped on the way home and then went to bed. When he got up he was still very puffty -- one of his eyes was half closed. I called the clinic and they felt it was just fluid and the fact he had been sleeping on that side. After he got up and around the puffiness reduced. We went to John and Judy's for dinner (my aunt and uncles friends who live in the same building). That helped to end the night on a good note as we both enjoyed ourselves and had some delicious food. Nathan was very pleased that he got a cupcake for dessert.

We are getting a major snowstorm currently. We are supposed to get up to a foot of snow. It will be an adventure making it into the hospital tomorrow.

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