Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Wednesday, January 28, 2004

Wednesday, January 28, 2004 8:05 PM CST

well - today was better. It was a more normal day as far as how Nathan reacted to his treatment. There was quite a bit of snow this morning. The sidewalks were not clear in many places. We didn't see any cabs and so I headed in the direction of the bus stop where the sidewalk was clear and we took two buses to the hospital. It actually didn't take all that long and we arrived on time.

Nathan had a nap when we came home and woke up pretty happy. We played a game of hide and seek and did some sticker books.

Luke called me this evening...Julia was having yet another screaming fit. She has been upset when they get home for the evening a few times lately. She cries for hours and hours. We don't know what to do about it. She has been through a lot lately and we thought this was going well but she is obviously having a harder time than we thought. It was so upsetting hearing her cry and that I could not just go pick her up and give he a hug and try to make her feel better.

On that note - Nathan and I will not be able to go home until Tuesday morning...this is not the best news but it is the way it has to be and so we are resigned to it. We have no choice but to get through all of this the best we can. It is alot of work to not let it get us all down. Julia is probably the only one of us who doesn't know how to hold it in and is expressing what the rest of us are feeling.

It could be worse though....

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