Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Friday, January 9, 2004

Friday, January 9, 2004 8:19 AM CST

Susan here...

Radiation continues to go just fine. No nausea or vomitting. It does tire Nathan out a little. The people there are great. The biomedical engineer who works on the machines has taken a shine to Nathan and brought him a cool race car/flatbed truck toy yesterday. He was a little down until that point (in fact I left Julia at home because he seemed to need some extra attention) and when he got the toy he perked right up got off of my lap and was fine.

We went to see his local oncologist yesterday afternoon. His weight was down a little more. He is very skinny. We decided to put him on IV nutrition to help beef him up. He started last night. His red blood count is also alittle low (not low enough for transfusion) so he was given some medicine to boost that up in hopes of increasing his energy level. He got a nice big metal dump truck from the clinic staff for Christmas.

Our car is back (driveable but not fixed all the way) and Luke will try to fix the garage door on Sunday. He is going skiing with my brother on Saturday which is something he is looking forward to.

We haven't heard anything yet about if Nathan and I have a flight on a corporate flight next week. I really hope they can find one.

No comments: