Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Wednesday, January 21, 2004

Wednesday, January 21, 2004 3:04 PM CST

Hi - sorry I didn't update yesterday. Treatment went as well as could be expected and we left around noon. Today treatment was delayed (long story) and so we got out of there around 1:00. Nathan wanted to go to McDonalds but he was so drugged up he just sat there. Hopefully he enjoyed going despite his condition.

I suppose there really isn't much to say about the last two days of treatment. He has pain, his heart rate soars and he deals with it. Today his hear rate was in the 190's. His resting heart rate is around 100 (remember kids have faster heart rates). It was that high for at least a half hour and was in the 150's when they let us leave. When his pain is the worst he just closes his eyes and I have to hold his oxygen and put the other hand on him and then I cannot move a muscle. I am usually like that for an hour.

We don't know exactly when we will be able to go home. We might need to stay an extra weekend in order to get a bone marrow aspiration done. I'll let you know when we know something.

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