Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Friday, May 21, 2004

Friday, May 21, 2004 6:00 AM CDT

Hello from South Carolina,

We are having a wonderful trip so far.

I will back up to Monday....Nathan went to the clinic. He had gotten sick too, though thankfully not a fever, just a cough. We think his illness affected his blood counts. His platelets were half of what they were the time before. To be safe we decided to get counts while we are on vacation.

Our trip to Hilton Head went smoothly. Wednesday morning we headed right out to the beach (the kids and I - Luke is working during the week) and they both enjoyed it tremendously. Nathan wanted to really go deep in the water and play but with having Julia and just me I really couldn't take him in too much. He wore his wetsuit like swimsuit that has SPF sun protection. It was great - it was cute and worked really well. I had even decided to get one for Julia and it was so nice not to slather them with sunscreen.

My parents got a bike trailer for the kids and so Wednesday evening we all went for a bike ride. The kids really liked being in the trailer and we got to see some horses, turtles and an alligator during our ride.

On Thursday I took a blood sample in for Nathan. I will get the results back today. Late afternoon we took the kids to the swimming poool, which is something Nathan hadn't done since he was a baby. He LOVED it and he even put his face right in the water to blow bubbles. He really seemed as though he wished he could swim. I convinced him to jump in the pool into my arms and he just had a ball. We are considering taking him for lessons at home. We had another evening bike ride too.

So as you can see, so far our vacation has been great. Nathan is running around like a normal kid and having the time of his life. Today the kids and I will probably go to the beach again. The weather is very warm and sunny. I haven't taken any pictures yet but when I do I will try to post one.

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