Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Tuesday, May 11, 2004

Tuesday, May 11, 2004 7:37 AM CDT

Hello - I hope all you moms out there had a Happy Mother's Day. While we did nothing special - I was just appreciative that I have both my children to spend the day with. That is all I need. Well - and my husband too!

We had a really good time having dinner with friends on Sunday night. Nathan joined right in all the running around and playing with the other kids and that was so great to see.

Yesterday the kids went to daycare in part to go see a fire truck museum. I went to the doctor. It is very strange for ME ot be the patient! Today I am going to the dentist later so the kids are back off to day care. I decided to keep them with me this morning since the week is so busy and also because we are having so landscaping done in the back yard and there will hopefully be a bobcat digging this morning so I hope that Nathan gets a chance to watch.

Wednesday we have a free day, Thursday, Nathan gets his hearing aides in the morning and then goes to the dentist. Friday he goes for his preschool assessment.

Next Tuesday we are off to Hilton Head Island to visit my parents. Luke will have to work during the days while we are there but we will still manage to have some nice family time, enjoy the beach and bikes and Luke and I plan to have a little time to ourselves as well. Nathan will be on accutane so I bought him some wetsuit like swimwear that has a high SPF. Hopefully we can throw that on him (plus a special hat I bought) and let him frlic in the sun. We have some very large bandages to put over his entire broviak for swimming.

He goes back to New York for antibodies starting June 7. He also needs his 3 month scans while we are there and so I scheduled those yesterday for June 3. So we will have to have an extra-long visit again. That's how it goes!

Well - it is breakfast time around here and since Nathan's life revolves around food right now it is serious business. Have a good day!

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