Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Saturday, May 1, 2004

Saturday, May 1, 2004 1:56 PM CDT

Hello! I can't belive it is already May.

I have since discovered that Nathan's teeth problems are common among the other Neuroblastoma kids. I am considering taking up to Children's hospital to a dentist there who is used to treating chemo patients. I like the dentist I saw here, but he seemed to blame poor hygiene for most of Nathan's problems when in fact it appears to have mainly been the chemo.

We haven't made any decisions about the hearing aides yet. We might get around to that next week.

Nathan is feeling good - happy and energetic. The other night it was time for him to get ready for bed and he was running from room to room and I told him it was time for line care and he told me he didn't want to go to bed yet - he wanted to run around some more. That was one of the best things I have heard out of him in a long time! He is eating like a horse and so we are very interrested to see what his weight will be next week at the clinic. We will hopefully get the urine test results back. I decided against calling back for them and figured we would just wait. It wouldn't change anything immediately anyway so I'd rather not worry about it.

Nathan is becoming more and more independent. He thinks he can't do many things and I find if I make him try he learns he can do them and then he is proud of himself.

This weekend we are not doing much. Luke has to work all weekend. I am going to a girl's night out tonight and I looking forward to that.

I hope all of you have a good weekend.

click on image below for video

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1 comment:

Tammy said...

I don't know if you can "see" comments here...but wanted to let you know I am loving seeing these video's I hadn't seen! :o) Precious times!