Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Wednesday, May 26, 2004

Wednesday, May 26, 2004 7:09 AM CDT

Hello...

We are continuing to have a wonderful vacation. There has been lots more swimming and biking and playing. Luke and I got to have a nice dinner out together eating fresh seafood outside by the marsh. We have also been going out after the kids are in bed - last night we played miniature golf.

Nathan's health is fine. His blood counts were a little improved over the previous time. Since that was the case we are not drawing his blood again here since he has a clinic appointment on Friday. The SPF swimsuit and very large bandages have been working really well for his swimming and his broviak is not at all worse for the wear and neither kid has had a hint of sunburn.

We are really considering having his broviak removed on June 24th when he is under anesthesia for his dental work. After a year it would be nice to stop the daily care and have Nathan go to preschool without it. The thought is always there about relapse and it would be nice to have a broviak-free period if that were to happen.

Someone important to our family is undergoing a surgery today - while we don't want to say anything more we ask those of you who pray for Nathan to pray for her safety and recovery.

I have not been able to get the pictures off the camera so when we get home I will put some up. We've got some good ones!

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