Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Wednesday, May 5, 2004

Wednesday, May 5, 2004 8:56 PM CDT

Hello - we had a very good day today.

The weather was beautiful and the kids and I went outside this morning in summer cloths and enjoyed ourselves. Around 11:00 Luke and I dropped off Julia at daycare and then Luke, Nathan and I got a quick bite to eat. Nathan and I went to the clinic and the good news starts here....He has put on a Kilogram (that's about 2.2 pounds which is about 15% of his body weight). That was in 2 weeks. Everyone could see it in his face. He was so talkative and happy and his doctor was so glad to "see Nathan's smile back"

His blood counts were good. Every single one was in the normal range for the first time. For those of you who are in the know - Hemoglobin was 12.5, platelets 180 white count 4.2.

His urine test results came back and were all normal. So we will got back in 2 weeks and see if his hemoglobin holds up on its own or not.

The next two days are free! I am so happy about this because next week is scheduled up completely. The weather will continue to be in the 80s and I am sure we will get out and enjoy it some more.

I will try to take a new picture of Nathan tomorrow to show off those round cheeks!


No comments: