Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Friday, June 11, 2004

Friday, June 11, 2004 6:38 AM CDT

It is Friday!!!

Yesterday was a bit more difficult. On Thursdays they need lots of blood. Even though his IV was working it would not draw blood. They had to stick him in his other arm to draw blood and it didn't flow freely so they had to dig around a little. The clowns stayed with Nathan and entertained him the whole time which was great. He started his antibodies late due to all the blood stuff. He was more cranky than he had been but did alright with the pain. He slept afterwards again and we got home a little after 3:00. He felt pretty good and was in a great mood, but had a low-grade fever and so he layed around mostly. He hasn't been eating this week. He eats about half a meal a day. This is common for kids in this treatment and so he will hopefully pick up his eating again afterwards. He has also been having diarrhea which I also hope is just an antibody thing.

After treatment today they will remove his IV. I am just hoping it is still working today so he doesn't have to get a new one for today. He will spend the weekend free of any kind of IV for the first time in 14 months!

Luke, Julia, Mike and Kathy (Luke's parents) arrive later today. We can't wait.

Oh - almost forgot to tell you...part of his bone marrow results are back. They do the bone core and the bone marrow aspirates. The bone cores came back clean so no we just wait for the aspirates. Over a week later I am really hoping they are back today so we can have it all behind us for the weekend.

We are supposed to have wonderful weather this weekend...sunny and 70s. Should be good for getting out and about. Sunday is the Puerto Rican parade down fifth avenue and in central park which we are right by and I hear it is a zoo. Should be interesting too. We will have to plan our activities in another direction though.

Well - we will be off soon for day 5 - halfway done!

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