Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Thursday, June 17, 2004

Thursday, June 17, 2004 6:01 AM CDT
Good morning,
Nathan had as good a birthday as he could considering the circumstances. We went off to the hospital where he got an ice cream sundae and a gift. His nurse brought him a balloon attached to a car which he really enjoyed.
He had his treatment and it was fine. Still plenty of pain so it doesn't appear he is going to develop a HAMA this time.
We got home and he was VERY cranky from the narcotic. He was complaining about everything - even his birthday cake not being exactly how he wanted it. He decided to have his cake and so he did - even though he was still drugged. After that he got his presents and played with them even though he seemed a little uncomfortable. Later in the afternoon Luke and Kathy took Nathan and Julia to the candy store and when they got back Nathan had finally recovered. We had a very nice dinner at the apartment and Judy joined us.
Now for some insurance news...Luke's company was recently purchased. We found out yesterday that our health insurance will change Aug. 1. It will be a different company. They have the usual exclusions for clinical trials. So - we will start over again in the process of getting the antibodies covered. His next round starts the middle of August so we will hopefully have time. Wish us luck.....
Well - off to the hospital again. 2 days left and counting....I am really hoping the IV will work today since they need lots of blood from it.








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