Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Wednesday, June 2, 2004

Wednesday, June 2, 2004 7:55 PM CDT

Greetings from New York...

We arrived this evening without too much trouble. Nathan is very happy to be here and was running and laughing and playing like mad. When I was getting him ready for bed he said, "I'm awfully cute, don't you think Mommy?"

It was very sad leaving. I am especially sad to break up Nathan and Julia - they have been having so much fun playing together. The other day she was tormenting him by repeatedly kissing him. Does it get any cuter?

Luke and I have finally made the rest of our summer plans and would like those of you in the area to save the afternoon of June 26th. We are having a picnic at a park pavillion. There are several reasons for this party; Number 1 - to thank everyone for all the support you have given us, Number 2 - to celebrate Nathan's current good health, and Number 3 - Nathan's 4th birthday! More details will be coming soon.

Our very busy summer also includes a trip to Illinois to visit Luke's parents, and trip to Chicago for Luke and I to go to the Neuroblastoma conference and a trip to Cancun for Luke and I to spend some quality time together.

Thanks for all the prayers for the person having surgery. The outcome was very good.

We are off to the hospital at 7:00 tomorrow morning for bone marrow aspirations. I am crossing my fingers that they will get done fairly early and then Nathan can eat. Later in the afternoon he will go back to get his MIBG injection for his scan on Friday.

One thing that made Nathan particularly happy today was a new stuffed animal wolf. He was given a wolf at the hopsital when he had his first surgery. That wolf slept with him for many many months and was with him for everything. Unfortunately we lost the wolf a few months ago in New York. He had not mentioned the wolf in ages but he woke up wanting it the other night and when Luke reminded him it was lost he sobbed and sobbed. IT was the saddest thing. He told Luke that the wolf was always with him in th hospital. So we were on a mission to find a new one - but with only half a day to find one. Fortunately, the airport gift shop had 3 to choose from and he picked one out and is so very happy about it. The wolf has been sitting with him ever since and watches him play. He wants to bring it with him tomorrow so it can sit on his lap while he is waiting. He has never been overly attached to anything like this before. It is very sweet.

Well - I will update again tomorrow night.

video from May 31


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