Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Sunday, June 6, 2004

Sunday, June 6, 2004 6:44 PM CDT

* Luke here just adding a little information on Nathan's big day as it trickles in. Nathan is out of surgery. He did fine. When I spoke with Susan on the phone he was in the background eating a doughnut and chatting away. Apparently he is happy that his broviac is out. The anticipation of the IV placement was rough, but Susan said he didn't even really flinch when it was placed, so maybe those won't be so bad. No news on scan results yet. *

Hello - hope everyone had a good weekend.

Nathan and I spent both mornings lazing around. Saturday we went out to lunch and then Nathan had a nap and afterwards we went to the Central Park Zoo and met Joshua (one of Nathan's treatment buddies) and his family. We all had a lot of fun. Nathan especially enjoyed the red pandas and the polar bear. Before we left they fed the sea lions and had them do tricks.

After the zoo we went to John and Judy's apartment to watch the Belmont Stakes and have some dinner. Nathan had brought up his garbage truck and we put him to work picking up the bits of fluff the dog, Fergus, was pulling out of a toy. He really had a good time and I have to convince him to go back and go to bed even though it was far past his bedtime.

Today we got on the bus and went to do some shopping. On the way back to catch the bus we found that there was a parade on the street we had hoped to catch the bus but we stayed and watched for awhile. It was a Philipine-american parade and there were some drums and bagpipes and other instruments.

It was late afternoon when we got back and Nathan sat on the couch and fell asleep against me for a while. He is in bed now.

Nathan has been having sudden headaches. He has had lots of them in the past few days and also several "sweats". These things make me quite nervous. I am anxious to hear scan results tomorrow. It is going to be quite a day. We need to be there at 7:30 and they will most likely do a finger stick(which he is just terrified about) and place an IV (which will be even worse). Then the broviak removal and then the antibodies.

My aunt Joan had called to chat a little while ago and she just called back to tell me she got tickets to come out tomorrow to stay and help me through the week. That is a big relief to me to know I will have help and company.

Well - I am getting tired - I will definitely update at least the scan results tomorrow.

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