Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Thursday, June 3, 2004

Thursday, June 3, 2004 7:35 PM CDT

Hello - today went pretty well. I woke up Nathan to go to the hospital and he got up very easily and happy. He knew he was getting his "back bandages" this morning and so didn't even ask for food or drink.

They got him in by 9:00 for his bone marrows and he woke up fairly well. He had a huge fit over his lack of a sippy cup soon after. It really was going to be a fit about something...anesthesia can do that to him. We got back to the apartment and by then he was feeling well enough to walk over to the drugstore to buy a sippy cup. We had lunch and he painted and had a nap. After his nap we took the subway to the hospital and he had his MIBG injection. That was fine and easy. There was an ice cream truck outside the hospital so he had a chocolate sprinkle cone. I then walked us (Nate in the stroller) all the way home. I am in need of excercise so I decided I might as well. The weather was beautiful. I stopped at a juice bar and had freshly juiced apple-pear juice. Nathan played for a while after that. He has been complaining off and on about his back hurting. He won't bend over and is very careful sitting.

We went up to Judy and John's apartment for dinner (we had run into them outside the apartment building earlier). Nathan was vey happy to see them and had to show them all his new airport trucks. We had a very nice dinner and then I ran to get Nathan some tylenol. He is now in bed and will hopefully sleep pain-free tonight. He is worried about his MIBG scan tomorrow. He has to lie still for an hour. It is quite daunting. He can watch a movie but at times the camera is in his way. I might have to let him pick out a new toy afterwards as an incentive. He also has his cat scan. That one is a piece of cake - well except that he has to drink the contrast. Last time it was no big deal so I am hoping for the same. I will mi it with Sprite and I think he might just drink it out of the cup.

We don't have to be to the hospital until around 9:00 tomorrow so we don't need to rush in the morning. Maybe if I am lucky Nathan will sleep until 7:00. I tend to stay up later here but he still gets up early!

I will be watching the scan tomorrow as an amateur radiologist hoping nothing "lights up". Last time the cap on his broviak lit up where he had the injection but I didn't know what it was because it was tucked strangely in his waisteband. This time I changed his cap so hopefully that won't happen again. So - I will update tomorrow night on how things go.

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