Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Friday, August 27, 2004

Friday, August 27, 2004 7:39 AM CDT

Good morning,

We are awaiting the final treatment. I am hoping they come hook him up soon. The car will pick us up from the Ronald at 2:45 and we will be on our way home. I need to finish packing when we get back so I am hoping fo smooth sailing today.

To back up a little... Wednesday afternoon Nathan and I went to Toys R Us to spend a gift card (Thanks Beth!) and then went to a cook out. Nathan asked me earlier inthe day if there was a cookout and was disappointed that there was because he wanted to eat in a restaurant. I explained that the cookout was free and he got over it.

Yesterday (Thursday) was labs day. His IV did not want to draw at first but after having some fluids run through it, it was able to give all the blood they needed and so no extra sticks. A volunteer came in and read to him a long time and his pain came while e was being read to and he was able to continue to listen for a while and so his pain was not too bad. He had some hives yesterday though. We went to Wendy's afterwards and he wanted to stay and eat but was a little fragile for that. He though his Coke didn't taste right and started crying. Everyone was looking at him because he looked so torn up. He was all puffy and blotchy. People were very nice though and he finally accepted my Coke. I did some packing in the afternoon and then we went to Joan's to drop off our things that stay in New York and had some dinner.

Our night was pretty good. Those who know me know that I have night terrors. Well - last night I thought I was trapped in some place and I banged on the wall and took the headboard off the wall before I woke up and figured out where I was! Luckily our room was at the end of the hall so no one was awakened (besides Nathan). I will be so glad to be in my own bed tonight!

Here's hoping for an quick and easy treatment and no delays in getting home tonight!

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