Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Sunday, August 22, 2004

Sunday, August 22, 2004 4:11 PM CDT

Hi! We are back in the city.

Friday's treatment was about the same but a little more crankiness. In fact I missed his pain because he insisted I go to the cafeteria and I told him I would not be there for his pain and he didn't care - he just wanted some food that he then did not eat. Of course I knew he wouldn't eat it but it is important he is not upset when the pain hits because it is harder for him to handle so I went anyway. He also threw a fit about having his IV taken out. For some reason he hates that part and it doesn't even hurt.

After some lunch and rest we took a subway to Grand Central Station and caught the train. The train ride was 80 minutes and Nathan enjoyed it. Our friends were there to pick us up and we went to their house and got the grand tour and a snack and then were off to a fair in Connecticut. There was a parade with fire trucks and bagpipers. It started to rain and so we went off and had dinner. It cleared up some in time for the kids to go on a few rides and then a thunderstorm began and so we left. By then it was late anyway. Nathan slept in the room with Garrett and his brother and had no problems.

Saturday it rained all day. After some playing in the morning we went to a children's museum and it was great. Nathan had a blast and I finally had to drag him out of the last exhibit when it was almost time to leave. We went out for dinner and then Nathan and Garrett had a bath together. When it came time for bed it was difficult because we were changing who got the bed and Nathan got upset. He really started crying and was very sad that he wasn't at his own house. He has never been homesick before but I think being in such a family environment was causing him to feel that way. He finally went to bed and slept all night.

This morning we went for a bike ride and had really nice weather. Nathan and Garrett where in a bike trailer and we all enjoyed being outside and getting some excercise.

We caught the 2:15 train back to the city and have had some food from a cookout and are hainging around. Nathan is still quite emotional today and stil very homesick.

So...5 treatments to go. Tomorrow will be long since it is a Monday and also since Nathan will get a new IV. I am hoping for a decrease in pain that will be a sign he is getting a HAMA.


No comments:

Post a Comment

Subscribe to: Post Comments (Atom)