Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Thursday, August 19, 2004

Thursday, August 19, 2004 8:38 PM CDT

Hi,

Another fairly good day here. Today Nathan asked for hispain medicine as soon as he felt some pain and so he actually didn't even cry out in pain today. He definately had pain but was able to cope very well.

His IV is still working but would not draw blood well enough. On Thursdays they draw lost of blood so they had to go ahead and poke him. I was showing him pictures on the computer while they did it and it went pretty well. There is a chance they did not get enough blood though.

We did some laundry and cleaning this afternoon and then went to a toy store. Nathad wanted to buy something to dress-up in and so he got a pirate set. He had a ball playing pirate. I had to teach him what to do with the sword. I put some pictures on the photo page below.

We went to a cookout at the Ronald (McDonald House but Ronald for short) and then they had pottery for the kids to paint. Nathan painted a cat and then we went back to the room and he had a bath. He was is really good spirits and played and sang in his bath. He has now rolled over to go to sleep and tomorrow is Friday and we will be halfway done!

Tomorrow we will head upstate to spend the weekend with a family we know through treatment. We spent rounds 2-4 with Garrett and his parents, Marianne and Eric. Now we are on opposite schedules and do not see them and they have invited us up. We will take a train tomorrow afternoon and it sounds like there are some fun things going on, including a parade tomorrow night. I may not update until we get back.

So - thanks everyone for keeping us in your thoughts and prayers. The way this week is going - you are doing a good job!




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