Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Wednesday, August 18, 2004

Wednesday, August 18, 2004 7:52 PM CDT

Good evening everyone.

We had another fairly good day (in antibody terms anyway). The pain was a little less today and he coped well with it. He didn't sleep when we got back but I actually dozed a little. Our nights have been a little sleepless around here. We went to Joan's apartment in the afternoon and hung and and had dinner. My cousin Laura also joined us. Nathan really enjoyed himself (as did I).

Some medical information...

Dr. Kushner said that having had 6 - 2 week rounds of accutane Nathan is done with his. This was news to me. I won't get into why I thought it was otherwise but I am happy to check another part of his therapy off the list. Dr. K will further test his immunities as well. They do a different test from which they will be able to see if he can be off his weekend antibiotic he has been taking all this time and also to see if his immune system is ready for reimmunizing. I also asked him what the average time to HAMA was for kids who didn't HAMA in the first 4 rounds. He said about 10 rounds.

After all this runaround with the kidney test which I was doing solely because Dr. K told me we needed to in June he asked me today what the big deal was in getting the tests and said he wouldn't even bother. I kept my mouth shut and just nodded. It is SO TYPICAL of the way things go here. So - we will reassess when we get home.

No comments:

Post a Comment

Subscribe to: Post Comments (Atom)