Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Saturday, August 28, 2004

Saturday, August 28, 2004 7:26 PM CDT

We are home!

Friday's treatment was riddled with pump problems and cranky Nathan but we survived and got the room cleaned and got out of there. Our flight was uneventful and Nathan slept for an hour of more of the flight so all was good.

Julia took off running into my arms when she saw me at the airport and it was a truly wonderful greeting. She is now potty trained (except for #2 which we are working on). Since she has reached this milestone we feel it is time to get rid of the crib and so we bought bunk beds today (don't have them yet) and she and Nathan will soon be sharing a room. This is something they both have said they wanted so we will see how it goes.

We had a pretty good day today as a family. The four of us cuddled in bed first thing this morning. IT is always difficult to transition back into things when Nathan and I return. Everybody is tired and emotional and I seem to need several days to adjust but by now we all know what to expect so all is good.

Monday Nathan starts preschool! We are so excited for him and think it will be a wonderful thing for him. He may likely have some rough times but I really think that overall it will something he loves.

I want to send a blanket thank you to everyone who sent cards to Nathan at the Ronald. They really brightened his day.

Nathan will have a break from all things medical for a while. The next thing on tap is his HAMA blood draw on Sept 9 - to be tested on Sept. 14. He will also have a hearing check up in October. The doctors in New York said that now he is off his accutane he needs no further oncology check ups until we get back to New York.

Nathan seems so healthy and hardy today. It is wonderful to see. Who know how long it will be this way but boy do we love it.

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