Well as is usual in the medical world all of our plans have changed.
The scheduling of surgery with intraoperative radiation is hard due to the special operating room and two doctor's schedules so they can not do it until August 31. Obviously this is disappointing - but we have a reasonable plan in place.
Nathan will have 1 or 2 rounds of a low-dose chemo combination - irronotecan and Temador. They will not supress his blood counts very much and we are hopeful he can go to school while recovering. The irronotecan causes diarrhea and Nathan will be given an antibiotic to combat it. That may be a problem given his history. The Temador is in a pill form and the irronotecan is IV, but other than the first few days of making sure he handles it fine we can do it at home. So - it will hopefully be a very easy chemo to do without too much time in the clinic or hospital. The main concern is since we can't do the surgery right away that the tumor not have a chance to spread. The doctors feel that this plan should handle the disease while we are waiting. I just hope that it holds to be true.
Nathan's counts are on the way back up but he is still neutropenic and so he still needs to remain fairly isolated this weekend. We may be off to my brother's cabin for a night just to get out of the house and have a change of scenery.
Nathan's hair is mostly all out. He seems to be taking it OK. Luke keeps his hair shaved very close and yesterday he shaved his dad's head and so now all three of them look fairly bald. I think Nathan got a kick out of it (I know I did).
Overall - Nathan continues to feel good and play as normal. The doctor was impressed with his energy. His platelets are low - but we are going to wait the weekend and see how they do.
Thanks for checking in with us....I hope you all have a good weekend.
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