Nathan had a really good weekend.
On Saturday we went for a picnic and he had a great time playing frisbee (he is actually quite good at throwing it) and he was really running around with good energy. The rest of the weekend was spent doing normal weekend things (but not out in public) and he really had almost normal energy - he was just more easily set off due to being tired.
This morning he had a little fever but none during the weekend.
We went to the clinc at 10:30 and didn't leave until 4:30 - so it was a long day. He got red blood and he also needed plateltes again already. He started coughing after the platelets, just like on Friday and this time he got hives too - so he is definately having an allergic reaction. This after after being premedicated - so I guess it is something we are going to have to deal with. He will most likely need them again this week. We are not going back until Friday and he will get them then. He may need red blood by then but we are gambling that we can get him through until next Monday. He is still on the antibiotics the rest of the week and we will reassess them on Friday. We have the schedule better for them - 6, 2 and 10 - but they run for an hour and it is hard for me to stay up until 11:00. Luke is out of town until tomorrow night and then he will take over the late shift. Luke turns 32 tomorrow...we will celebrate on Wednesday.
Mike and Kathy are still here and the kids are loving having them (me too, of course).
I am not sure what the rest of the week holds. We are free from the clinic all week - but can't take Nathan anywhere and we probably should limit his contact with other kids - so we will have to think of some activities.
We got half of his urine results which are slightly elevated for neuroblastoma. That is no surprise - we are glad they weren't very high.
That is about all I can think to write tonight...I feel like there is more - but once again I am just too tired to think of it.
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