Nathan's counts are finally starting to move up. He actually has neutrophils today which mean his immunity is starting to build. His platelets responded really well to the transfusion yesterday going to 101 from 2. He had red blood today, but probably could have gone without since it was up just a tad. Unfortunately it was a long day at the clinic - they were busy and didn't get his blood hooked up until 2.5 hours after we arrived. We were there from 9:30 to 3:00.
He will go in on Monday afternoon to check counts again.
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Thursday, July 21, 2005 5:20 PM CDT
Nathan's counts are STILL low.
He had almost no platelets (2,000) normal is over 140,000. He hasn't had any nosebleeds so we were surprised they were that low. However - he has a zillion awful bruises all over his body and head due to having such low platelets - he really looks a mess! He also needs red blood cells. He got the platelets today but will get the red blood tomorrow. His white blood count is stuck at .5 with no signs of the cells that will send it higher.
So - he will not be starting chemo next week and now there is a question of if he will even have the Temador - which could suppress his counts. He really needs to resume some sort of chemo to keep the tumor in check. BUT - he really needs good blood counts to have his surgery. I really wish they could get him in sooner. It looks like the August 1 date may not have worked anyway seeing how low his counts are still.
The good news is that he is feeling just fine. That is one reason he has so many brusises because he is running around playing like any normal 5 year old. The low counts mean that we are still housebound. It is getting really old by now. I am really hoping we see some sort of increase in his white blood cell count tomorrow - but we probably won't be able to take him out this weekend.
We are still waiting to hear that his surgery date is final. I had called just to see how many days before we would have to arrive and they said it was only pencilled in at this point. I really hope that it does not get moved back even further. His oncologist in NY is out this week - so we are hoping to find out more next week. Unfortunately Nathan's local oncologist is out next week.
Luke and I are tired and stressed....the house is a wreck..etc etc. Hopefully tomorrow will be a better day.
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