Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Wednesday, July 27, 2005

Wednesday, July 27, 2005 8:58 AM CDT

Just an update to tell you that we have had word that Nathan's surgery has been pushed back yet again to September 14. Luke and I are very uncomfortable with that and are waiting to speak to his oncologist in New York. At this time we are considering going elsewhere for surgery - though very reluctantly.

We are really hoping that we can ge things figured out when we hear from his oncologist - but itis likely that Luke and I will have to make a big decision about timing of surgery versus surgeon and whether or not to wait in order to do the intraoperative radiation.

We are extremely frustratated because every day this tumor remains in Nathan's body it has a chance to start spreading. If that should happen his prognosis is extremely grim. We just don't know if we can stand by and wait for surgery due to administrative and scheduling problems. If his cancer should spread in that time - because they couldn't get him on the schedule that would be devastating.

So - please send all your thoughts and prayers this way for a resolution and a decision that Luke and I can feel comfortable with.

I will update when we hear anything.

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