Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Sunday, November 23, 2003

Sunday, November 23, 2003 6:21 AM CST

Susan here...

Sorry I didn't update again last night. They finally decided to wake Nathan up yesterday afternoon to remove the breathing tube. They were waiting fo him to wake up but we could tell he was just staying asleep to avoid being conscious while it was in. He was responding to us by nodding when we would ask him things but then would just go back to sleep. After the tube came out (which was no big deal to my surprise) he started talking to us. He took a little nap and then woke up asking us to read a book. We then put a movie on for him and he stayed awake for awhile watching. He had a good night and doesn't seem to be in very much pain. He still has the epidural for pain control but is not on any sedating medications. I slept in the hospital and Luke went back to the Ronald McDonald House to sleep since he was very very tired due to being up some the night before being talked to by another parent in the "quiet room".

We expect Nathan wil be awake more today and they may try to sit him up a little.

He had a sponge bath and linen change this morning which he didn't like but it was very good for his lungs to complain a little. He still can't be very loud.

This time I promise to update later!

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