Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Wednesday, November 12

Wednesday, November 12, 2003 9:00 PM CST

Luke here...Well, there actually isn't much to report. We have had a pretty good week so far. Having made the decisions regarding surery is a load off our collective backs. We feel very good about our decision and are working on plans. We are working on details of the trip. We will likely leave on 11/19 as we will meet with the surgeon on 11/20 and have the surgery on 11/21. We don't know if the antibody treatment will start on the same trip because they don't know how quickly or how well he will recover from surgery. We hope to start antibodies on the same trip. We shall see. We will be in New York over Thanksgiving and we already have a family to spend the holiday with if Nathan is out of the hospital. We have great friends from DC whose extended family will be celebrating in the city and they thoughtfully extended us an invite. We are excited to have plans lined up. This Friday we will meet with the radiation therapists here in the Springs to plan out the therapy Nathan will receive between antibody treatments in NY. No real news since the last update.

Nathans is doing well and enjoying being back home. He handles the mask and restrictions well and is having a good time here. Julia is doing well too. She was sick, but feeling fine now. We are dreading being separated from her again, but we have wonderful loving care lined up for her. Susan and I are hanging in there. There are a lot of details to take care of, but we are working on it.

Thanks to everyone for their support and letting us know they think we made the right decision. A special thanks to those New Yorkers who read who have already offered their help and company while we are there. We are looking forward to seeing you.

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