Luke here...I started this post and had to start over. I was basing my post on us having a couple of things to be thankful for tonight going into the holiday tomorrow. I started listing the "couple" of things and the list got too long. It was nice to remind myself of all of the good things we have going for us. Tonight the top of the list has to be that Dr. La Quaglia removed "all" of Nathan's tumor and that as I write this he is in the Ronald McDonald House room with Susan and I. He was released today much to our surprise. Susan still isn't feeling great, so I stayed with Nathan last night. We didn't sleep great. He is having some trouble with his bowels (I'll spare the specifics on this one) so it was a restless night. I woke up to find that they had cut off his IV fluids and seriously rolled back his oxygen. Susan came in and I went back to RMH to shower and change. She called saying that they thought Nathan might be able to leave today. She got him up and walking, which was a struggle because he really didn't want to. He was coping with this stay by sleeping and he didn't want to work at anything. He walked just fine with no incision pain. The day was a little annoying as some of the docs seemed to want him to stay and some wanted to get him out before the holiday. Finally it came down to whether or not his oxygen saturations were holding on room air and it turned out they were. We had one major episode. He was supposed to have an echocardiogram in prep for his trial. He threw the biggest fit. He screamed and screamed. They can't get a valid test when he is like that, so much to our chagrin he won and we didn't do it. He will have to have one, and I suspect it will go fine the next time. It has turned out that getting out was great for him. He played and was happy here and in general was acting normal. Typically in one of his hospital stays he reaches a point where being in-patient holds him back. He was there on this stay.
We are very happy to have him out, that he handled and recovered from this very serious surgery so well, and that we can have Thanksgiving with family and friends here in NY tomorrow (Joan, I know you are reading. Please consider that our "thankful" for tomorrow).
We miss Julia terribly, but we know that she is doing well and with people who love her. I don't think we will hold out until Christmas without her. We'll have to see how it all works out.
Please have a wonderful Thanksgiving. Despite everything we have been dealing with, we will and I want all of you to have a great one too. Eat a little too much. Drink a little too much. Enjoy your family and friends.
We are so thankful for all of the support and love that we have gotten from our friends. Thank you all.
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