Monday, November 10, 2003 5:18 PM CST
Susan here...
Well - the decision has been made - we will be going to New York for the surgery. They will not be doing the radiation during the surgery but the surgeon says he has seen tumors like Nathan's before and has been able to remove them. That is not something the other surgeon was willing to say. He of course gave us no guarantees that he could remove it but we know he has had lots of experience with neuroblastoma surgeries. It came down to the fact that if we did the surgery here and they didn't get it all we would regret not going to New York. If we go to New York and they don't get it all at least we can be confident that we had one of the best surgeons attempting it and at least we gave it a shot. I contacted Nathan's insurance case manager and she is working on getting approval. We have no idea how difficult that will be but we are committed to doing the surgery in New York whether insurance pays for it or we do. The durgeon says there are different ways they may be able to help us deal with insurance of the costs if neccessary. The surgery is scheduled for November 21 and we need to be there by the 20th. We have emailed the study doctor to ask him if we can expect to stay in New York and do the scans and antibodies all in the same trip. If so, we will be there for about 4 weeks.
We are going to start working on all the details now, but a weight has been lifted from us now that we made the decision.
Nathan was at the clinic today and doing just fine!
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