Friday, November 7, 2003

Friday, November 7, 2003 9:53 AM CST

Susan here..

Well - here is the latest. I got a call yesterday from the Dr.'s office in New York telling us of the surgery in New York (which we already knew about) but I asked her about the intraoperative radiation and she said she did not see that on the schedule. She transferred me to the surgeons office and his assistant said she didn't see it on the schedule either. We sent an email to the study doctor and got an out of office auto-reply. So basically Nathan's doctor who left me a voice mail about the surgery and radiation is unavailable at the children's oncology group meeting as well as the study doctor and the surgeon. So we have no way of finding out. If there is to be no radiation in New York we will probably just do the surgery here. We haven't heard back from the insurance company about doing surgery in New York. If we do surgery here it will be next Wednesday. We would then hope to go to New York in two weeks or so to start the antibody trial testing. We are hoping we might hear something from somebody today but it is not likely.

Nathan is doing well. He did sleep very poorly last night - he seemed to be stressed out about something - he is probably picking up on the stress in the house and he has heard us talking endlessly about surgery. Julia is sick. She had the stomach flu on Wednesday and then was better yesterday and is bad again today. We are hoping Nathan doesn't get it. We have no idea where she may have gotten it since she has been isolated. She is currently sleeping and we hope sleeping it off.

Well - Nathan has requested some more toast so I'd better got get him some. He has been eating a drinking very well and we are very pleased with that. Some children stop eating after tranplsant.