Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Tuesday, November 25, 2003

Tuesday, November 25, 2003 8:37 PM CST

Luke here...Nathan is out of the ICU. He moved from the ICU just after noon. He continues to recover well. This morning he just wanted to sleep and we pretty much let him. The trip over here was pretty good. It is a short ambulance ride, but that is pretty exciting. The room here is okay. It is nice, but small. The amenities on the floor are very nice. They redid this unit and just moved kids into it yesterday. Nathan has done pretty well here. He was tired and cranky after the move. He ate pretty well and is on a normal diet now. The surgeon really wants him up and about, so we forced him to walk. He did pretty well although he wasn't at all happy about it. They turned off and then pulled his epidural today. He is having some pain. Earlier it was bad, but now it seems to be controlled. Tomorrow we will push the walking even more.

We talked to the study doc some. He stopped by. He hopes to schedule Nathan's tests for next week and forsees a realistic start date of 12/15. That would put us still here in NY on Christmas. The logistics of that will be tough, but overall we are okay with it. Nathan will not yet be discharged on Thanksgiving. We will make the best out of it. Apparently they cater a very nice Thanksgiving meal here.

The big news is really that Nathan is continuing to recover well. He is bounding back from this surgery very well.

We are hoping to have some pathology on the bone marrow tomorrow and maybe the tumor by the end of the week. With this being a holiday week I'm not counting on seeing any results until early next week.

Thanks to everyone for following along so closely.

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