Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Monday, December 15, 2003

Monday, December 15, 2003 8:26 PM CST

Susan here...

Well - today wasn't so bad. We sat around the clinic for a long time. They were running far behind. They insisted on taking his blood by finger-prick and also I had to give him his shot but he did well with both. Once we finally got into a room around 1:00 they premedicated him with a pain medicine and anti-inflammatory and then gave him the antibody. His pain came rather suddenly about 2/3 of the way through. He was in great pain and was holding his breath and grunting and crying and writhing around. They gave him two more doses of pain medication in about 8 minutes and he basically passed out from that. In fact they were then unable to get a blood pressure read from him. The funny thing was that if we asked him a question he would respond but he had really low blood pressure. They gave him some fluids and it finally came back up and he woke the rest of the way up. When it was time to go he threw a big fit because he wanted to stay in the comfortable bed. I made him get in the stroller and he was fine after we got home and he watched some TV ate a little dinner and watched Frosty the Snowman and then went to bed aroun 6:30.

Tomorrow we go in around 8:00 and it should be a much shorter day. He gets so upset about going in the morning so that will be a pain. He reall doesn't like going there mostly because we sit and wait and wait and wait in a very large, noisy, crowded waiting room for hours on end and he really want a comfy quiet place to be. I can't blame him!

I will try to update tomorrow night to let you know how day #2 goes. They say it is less painful every day that goes by so at least that is something!

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