Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Sunday, December 14, 2003

 

Sunday, December 14, 2003 6:48 AM CST

Susan here..

** I wanted to add some information to the entry today -

here are some links to information about the antibody trial. The first is simpler the second is the actual trial

http://www.mskcc.org/mskcc/html/3215.cfm

http://www.mskcc.org/mskcc/html/2270.cfm?peds=yes&IRBNO=03-077&team=Neuroblastoma&TT=

Sorry for the delay in updates. My mom brought Julia to New York yesterday (and flew right back out) It is great to see her. Nathan is so calm and quiet and we had forgotten what a force of nature Julia is. She is delightful and also tiring! She and Nathan were very happy to see eachother. Julia gave Nathan a big hug and kiss.

We got almost no sleep last night. New York City is just plain loud all night on the weekends. Julia woke up screaming in the night and I brought her to bed with us but she didn't sleep very well with us. At one point Luke woke up with Julia kissing him on the cheek. Nathan started crying when I took Julia out because he wanted her in with him. I think she just didn't know where she was and I hope it will get better.

Tomorrow Nathan's treatments will begin and we are expecting it to be quite awful. We will let you know how the day went.

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