Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Tuesday, December 9, 2003

Tuesday, December 9, 2003 2:24 PM CST

Susan here...

Some good news today - all of Nathan's tests were negative for cancer! We know there are microscopic amounts of cancer left from the tumor being removed and that is why we are doing the antibodies and radiation. We also know that many children (we have been told 50%) relapse after achieving NED (no evidence of disease) for months or years. Knowing all this we are still so vey happy that Nathan has at least reached this point in his cancer treatments.

We went to the clinic today and after waiting around for a few hours we got to see the study doctor. We will start injections of a medication tomorrow morning. Luke and I had to watch a video on how to give him the injection. An alternative is to place a little catheter in his thigh that can stay in for a week at a time that we could give him the medication. However he can not bathe with it in and the medication itself really stings so it doesn't avoid that - so we are going to try doing the daily shot and see how it goes.

He doesn't have to go to the doctor again until Monday. We will figure out what we want to do with the rest of our week.

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