Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Friday, December 26, 2003

Friday, December 26, 2003 6:55 AM CST

Susan here...

We had a really good Christmas. Santa was very good to the kids and they loved their gifts. We could barely fit them all in this little apartment. The kids spent the whole day in their pajamas and played.

Nathan was very excited about Santa coming. He had all kinds of concerns the days leading up to Christmas about how Santa would get into the apartment, and how Santa could get to the tree with Luke and I sleeping in the way. Julia was misbehaving as they got ready for bed Christmas Eve and Nathan was concerned that she be good so Santa would come.

Last night we started packing and boxing up all the new toys. Today we will ship them home.

Luke is with Nathan today. He will have his treatment and a bone marrow aspiration. He isn't allowed to eat or drink for the bone marrow and we don't even know what time he will get it. Most likely it won't be until the afternoon so he has a long hungry thirsty day ahead of him. He was being amazingly good about it this morning. It helps that we keep reminding him that he gets to go home tomorrow if we can just do all the things we need to do today.

He had his last shot today. He gets almost 3 weeks off for those at least. He starts those back up Jan 14 and his next round of antibodies begins Jan 19. Monday morning he goes in to start radiation. He will be doing radiation every Mon-Fri while we are home. We feel so bad for him that for basically 7 weeks in a row he will go have some kind of treatment every weekday. At least radiation will be at home.

I put some Christmas pictures on the photo album page. Hope you all had a Merry Christmas too!

 DSCN2117 DSCN2124 DSCN2155 DSCN2159 DSCN2163DSCN2175 DSCN2173

No comments:

Post a Comment

Subscribe to: Post Comments (Atom)