Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Wednesday, December 31, 2003

Wednesday, December 31, 2003 7:46 AM CST

Susan here...

Sorry for the delay in updates. We are so much enjoying being home I have been avoiding updating I suppose.

Monday I took Nathan to the radiation oncologist. First off they laid him on a garbage bag looking thing on the radiation table and filled the bag with liquid styrafoam. As he lay there it got big and puffy and created a "cradle" for him. He will lie in this during radiation to help him in the proper position. They then drew up him with a sharpie to mark some positioning things (the alternative being a tattoo so we were so glad they used the sharpie). After that he had a cat scan and then they sent us on our way. He was very good and lay still and I think he will do just fine.

Yesterday we didn't have to do anything medical and so we saw some friends and the kids played with their friends and it was really nice to do something normal.

Today Nathan and I go off for the radiation simulation and if the DR. had time to do the neccessary calculations we will also do the first radiation session immediately following the simulation. The radiation session itself lasts only about 10 minutes. Everyone has to leave the room but I think Nathan will be OK with that.

We will be doing the radiation for 12 sessions. If he gets to start today we will get New Years and weekends off and go the rest of the weekdays until we go back to New York.

I will update tonight and add some more things but right now I hear both kids awake and so I must be off.

No comments:

Post a Comment

Subscribe to: Post Comments (Atom)