Susan here...
Nathan and I had an adventure filled day. Luke left to go work and after breakfast Nathan and I hopped on a bus and sent to Times Square. There is a huge Toys R Us there with a ferris wheel inside. Nathan really enjoyed riding it and looking at all the toys. He picked out a Care Bear to give Julia for Christmas. After we left we had some lunch and took the subway to my Aunt's apartment. We went the round about way since shen we transferred I got on the train going the wrong way. I was too preoccupied in trying to find an elevator that I wasn't paying close enough attention. Nathan thouroghly enjoyed the bus and subway rides and I did too though carrying him, bags and a stroller up and down stairs in the subway was very hard. When we got to my aunt's Nathan excitedly told Luke all about our adventures. We hung out there the rest of the afternoon and Nathan didn't want to nap and so he was about to fall over by the time we got back to the Ronald McDonald House. He is now fast asleep.
On Monday I called the clinic to see what was up with his test being scheduled and had to leave a message and was not called back. I called again this morning and found out the the inpatient doctors were supposed to have scheduled all the test before they discharged him. So...his MIGB injection will be tomorrow and the scan on Friday afternoon (which means no food all day for NAthan...that will be awful). He also needs an echocardiogram and a cat scan of his head. Those will be done this week or next. Since they squeezed in the MIBG scan for Friday he should still be on schedule to start on the 15th unless his test results say otherwise. We are hoping to have some pathology results from the tumor and bone marrow they took during the surgery.
I have a feeling that between his surgery post-op appointment tomorrow and his infection appointment in the afternoon that we will spend most of the day in the clinic. At least we got a week's break from it all.
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