Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Monday, March 1, 2004

Monday, March 1, 2004 12:45 AM CST

Hello - we got through today's treatment - 4 more to go.

I'll back up to yesterday. In the morning I met my friend Louise and had a good time chatting with her. In the afternoon after packing and cleaning my cousin Laura came to help us move. Nathan was in a lot of pain from his bottom. It was the worst I have ever seen. He was just screaming at me to help him get rid of the pain and he lay on the floor thrashing around. He got all worked up and was very sweaty and then was very upset about that and wouldn't listen to any of my suggestions to help. I finally called Luke on the pretense that he could help and Nathan calmed down. I got off the phone and told him Luke said to try a cold wash cloth. That calmed Nathan right down and he was ready to go. It has been awhile since he has been quite so hysterical. I really couldn't tell if I needed to take him to the hospital or if it was "just" pain and a tantrum all rolled in together. I decided it was the latter because he could speak logically to me in bits and pieces throughout the fit.

We went off to the Ronald McDonald house. The room this time is very clean. After dumping our things there we went to the East Village with Laura to meet her boyfriend and his son for dinner. We had some really good pizza and we all enjoyed ourselves.

Sleeping didn't go so well last night because it was sweltering in the room. I finally opened the window around 11:30 and it started to cool off but Nathan was throwing a huge fit about being sweaty and all I could tell him was that I was hot too and I was trying to cool it off. He has gotten into a phase in the last week were he will scream at me telling me to fix something or make something better and usually it is out of my control and I can't do a darn thing and I try to tell him and he just continues to scream at me over and ove to make it better. It is extremely frustrating and upsetting.

The upside to the late night episode was that I was wide awake after that and flipped on the TV in time to see the major awards given out at the Oscars and then went back to sleep.

So we were off to the clinic this morning and it went pretty well. Tomorrow will be very trying as I have to wake him up early and force oral contrast in him for his cat scan. He can't eat or drink anything after I do that. It will be a long screaming morning. Later in the afternoon we will go back to the hospital for his MIBG injection. It will be in his broviak so is no big deal. Wish us luck with our morning tomorrow!

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