Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Saturday, March 6, 2004

Saturday, March 6, 2004 6:32 AM CST

Well - antibodies are finally done for this trip! Yesterday went OK. No major events. The moment Nathan gets his dilaudid (narcotic) he is cranky. It is instantaneous. He just seems to have developed that as a response as he has done with numerous other medications.

We were back at the room by noon and he slept for an hour or so. After ordering his some lasagne (his new favorite food) we got a call from the hospital that we should be there at 10:00 on Monday for his bone marrow (this would make his appointment at noon). He was supposed to be there at 7:00. The woman said there was a schedule change and I told her I had a plane to catch and so she said she would try. We got off the phone and I was upset and worried about it since they always run behind. Since Nathan and I were going out anyway we just walked over to the hospital and I went and talked to her. He is scheduled for the procedure at 10:00 which even if they are an hour late should work out. She knows my situation and it should be fine.

Afterwards we got on the bus and went to Times Square. Nathan had been asking to go there and was excited when he saw it out the window and realized that was where we were going. We went to Toys R Us and I had told him he would have to walk there and he did great and walked for most of the time.

His energy is up a little and so is his weight. He has definitely gained some weight and his legs are not nearly as spindly as they were. The bowel problem seems to be a little better but we will have to wait and see what happens after he is off the narcotics for a few days since that is constipating.

Not sure what we are up to today. We bought a little wooden train set for him to play with. There is a little girl from his Grandma Kathy's church who saved up all her change all summer and then decided she wanted to send it to Nathan and so we used those funds to buy the train.

So I think we will mostly stay in today because it is raining. It is nice just lazing around this morning.

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