Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Thursday, March 11, 2004

Thursday, March 11, 2004 8:02 AM CST

Good morning,

Yesterday was a better day. Nathan woke up in a great mood and was playing and smiling. After a while he said his tummy hurt and he wanted to go to bed. He slept for about 2 hours and then I got him up to go to his hearing test. On the way there he threw up all over himself. We rescheduled and came back home. He seemed to feel really good at that point and had a good afternoon. Don't really know what it was all about but he did eat a very large volume of food in the morning so maybe it was too much for him to handle.

Today he has an appointment at the oncology clinic just to check in there and after that he will have his hearing test.

Yesterday I booked myself a weekend trip to Tucson (to my aunt's house). Though I really don't want to be away from Julia and Luke again I really need some time off. I am leaving Saturday morning and returning Monday afternoon.

I have really been enjoying my time with Julia. We got some good playtime while Nathan was napping yesterday and she is such fun. Nathan and she are very different, and with Nathan going through what he is - he is such a serious reserved child (though I can't blame it all on his illness since my personality is also similar) it is refreshing to be around a vivacious child.

I will close with some excerpts from his scan reports that keep me going and make the antibodies worthwhile

* Normal CT of the brain

* Normal CT ( cat scan) examination of the orbits

*Status post upper abdominal resection of soft tissue mass - No evidence of recurrent or residual disease

* MIBG Scan - There is no significant interval change since the last scan of December, 2003 - Negative MIBG scan showing no evidence of tumor recurrence

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