Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Wednesday, March 3, 2004

Wednesday, March 3, 2004 4:09 PM CST

Hello -

So we got up early to start the day. While I was drying my hair Nathan came in and wanted to practice the scan and so we scanned his stuffed animals. He did really well during the scan. He had to lay still for over an hour. We had a movie playing for him and he complained a little about how long it took but did great. Afterwards he got to pick out a toy from the playroom to have. He chose some play tools.

During the scan I could see a very bright spot on the left side of his abdomen. The tech called in the radiologist and they flused his line. They could see the isotope in his line which is on his left side in his chest. I was still very worried about the other spot and when we got upstairs I asked the doctor to take a look. He looked at the scan and asked me about his broviak. He thinks it looks like the cap on his broviak. He said it was almost too well-defined to be anything else. His broviak end was tucked in the left side of the waist band of his pants. The CT scan results of his abdomen and pelvis were not in yet to compare to. The CT of his head and orbits is normal. So - tomorrow I should have the definitive answer but it will hopefully be fine.

His antibody therapy went better today. He had a few minutes of nastiness but not too bad and his blood pressure stayed fine. Afterwards we came bak and he slept for a while. When he woke up he wanted McDonalds and so we went off to get some and I got myself some food at a coffee shop and came back and ate. We ran into some friends whose little boy is also undergoing the same treatment and we sat out on the terrace with them and then went off to a Hallmark shop for a few minutes. They invited us to dinner with them and their uncle tonight. After some playtime in the playroom we met them and went to a barbecue place and had a good dinner. Nathan was very well behaved and ate pretty well. The other little boy, Garrett, did well too and his mom Mary Ann and I both had frozen apple martinis to drink which were very yummy.

It was nice to have some company (and good company at that!) for quite a bit of time today. So - 2 days left and 5 days until we are home.

I'll update on scan results tomorrow.

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