Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Saturday, March 13, 2004

Saturday, March 13, 2004 3:05 PM CST

Luke here...Things are overall going very well. Nathan had appointments at the audiologist and with his local oncologist this week. The results of his hearing test showed stable compared to his last test. If you recall, his last test showed hearing loss (as a result of the chemo agents) down into mid frequencies. We haven't actually talked to anyone other than a tech about this. Susan asked the tech administering the exam and she said Nathan probably has trouble hearing soft consonants like Ss ant Ts. We know that we have to really sound out some words for him forcefully at times. He may need hearing aids in the future in classroom settings and such. Obviously no big deal. No news really from his onc visit.

Susan left this morning for a weekend getaway with her aunts in Tucson. She is there now and has a relaxing weekend planned. The kids and I had a great morning. Nathan looked out and saw the blue skies and said, "It sure is a beautiful day today". If you know Nathan, you know he talks around things. He often won't come right out and say what he means. I recognized this immediately as, "Can we play outside?". We let it warm up and then went to a park. Nathan ran (as well as he can), swung (see new picture at top of page), and climbed on the toys and did the slides. He played hard for a half-hour or so which is really great for him. He was really worn out when we were done, but it was so great to hear him laugh and see him expending energy playing. Good signs. We got home and had lunch. The kids played by themselves and went down easily for their nap allowing me to watch a basketball game I wanted to see (Go Illini!). Tonight we are invited to friends' for dinner and really looking forward to it.

Thanks for checking in. I hope you all are having a good weekend.

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