Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Monday, March 29, 2004

Monday, March 29, 2004 8:10 PM CST

Well - long day as expected. We got to the clinic around 8:00. It was disorienting because the clinic moved and we didn't know where anything was and they changed the way they do some things.

We saw the doctor and I verified that there will be no bone marrow aspiration after this round so we will definitely go home after the last day of treatment.

Nathan didn't get treatment started until 2:00. The new patient rooms are under a glass ceiling and so it was a struggle to keep the sun out of his eyes and even in the shade the room was too bright for him. By the time he was done his head was under the tray table with a blanket draped over it. We got home around 5:30.

He had a lot of pain today. He had an extra dose of pain medication and I had to give him a dose tonight because when he woke up he was i a lot of pain. He decided to get up for a while but then the pain medicine put him to sleep in my lap and so I put him back to bed. I imagine he will be up some in the night. I am just hoping he can get back to sleep despite the pain.

I am tired...I'll try to do a better job with the update tomorrow.

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