Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.
Monday, September 27, 2004 9:25 PM CDT

First off - no new medical news. I expect to be able to get the MIBG results tomorrow. Part of the bone marrow results may also be available.

We had a really good weekend. We all went to the hospital for the MIBG scan and then we left from there to go to the mountains. It was the perfect weekend to go since the Aspens were all at peak color and the weather was 60s and sunny. The scenery was absolutely beautiful. We hung out some after we got there and then went in to town (Grand Lake) and the kids played at a playground and we walked along the lake and had ice cream. The kids slept without a peep and we had a leisurely morning, went for a walk, played outside some and then after lunch we drove home.

Ellie was mad at us for leaving (our neighbors were keeping an eye on her) and she got out of the yard. Fortunately some neighbors caught her and put her in our other neighbor's yard. We knew exactly where she got out because it was clear that she could, but never had. She also left us a smelly present in the dining room when we got home.

Today the kids and I went to a playgroup and then I tried to put them in quiet time but they kept coming out of the rooms. The afternoon went downhill from there culminating in Nathan throwing a huge fit because I told him to wash his face before he got out of the tub. He absolutely refused and I absolutely refused to do it for him. Of course, it had nothing to do with washing his face. We had even had some conversations today about how he has to do the things I tell him even when he doesn't want to. He is just really mad at that fact. He finally washed his face after a good half hour or more when Luke came home and he heard him coming upstairs. He spent that half hour screaming at the top of his lungs. I had to bar him out of the bedroom while he screamed so I could read Julia a bedtime story. He had been warned by Luke that if he was not good while he was gone (playing basketball) that he would get punished when he returned. I guess that is why he finally relented. He got punished anyway since he had already gone way beyond the point of being bad. My voice is hoarse from trying to talk to him over his screams. Anyway.....tomorrow is Tuesday and so the kids will be at daycare. That is probably a good thing for Nathan and I. I had been feeling a little bad because tomorrow is my birthday and I thought maybe I should spend it with them. Now I see that we will have a better day if we don't.

I will update again as soon as I have more test results.

No comments:

Post a Comment

Subscribe to: Post Comments (Atom)