Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Thursday, September 9, 2004

Thursday, September 9, 2004 7:15 PM CDT

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Update a little later in the evening. I forgot to mention two things in the earlier entry.

First off - about his new picture. I asked him to go pick out some clothes and he came back with that hawaiian outfit (courtesy of my father). He was so excited about it and so cute I just had to take a picture.





The other thing is that all his blood counts came back great! It is only the second time or so that they have been so normal. They always go down during antibodies so it is nice to see them nice and normal.
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Hello,

Thanks for checking in on us.

Today Nathan went to the clinic. He did a great job with is blood draw even though as usual, he had to be stuck two times before it would draw blood. I always have numbing cream on him so it really doesn't hurt too much. The blood has been sent to New York to await Tuesday's test.

We talked to his doctor for awhile. He heard from New York about the immunity test and is also expecting the results but no word yet.

I asked about doing the bone marrows locally and he told me that it is no problem to do them over at the hospital under anesthesia, which is our preference. He is going to check with the doctor in New York but it should be no problem. We will also do a urine spot check some time next week. The rest of the scans we will do in New York because they have all the previous scans there and they can be interpreted more quickly and more accurately that way. The scans can be done on treatment days so they don't add extra time in New York like the bone marrow biopsies do.

The meeting left me so thankful, once again, for how wonderful our local doctor and nurses are. The care is so personal and patient. The communication between us is as good as it could be. It is a wonderful thing.

Nathan had another good week at preschool (he is off on Fridays). I think he enjoys snack time the most!

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